We are a national patient advocacy organization that supports public funding of stem cell research. This research has the potential to remedy or cure Alzheimer's, juvenile diabetes, Parkinson's, MS, ALS, spinal cord injury, and many other illnesses and injuries.

SCAN is sponsored by the Genetic Policy Institute.

Many of our postings over the past year have been written by stem cell research advocate Don Reed. His blog is www.stemcellbattles.com.

We'd like to hear from you. Feel free to And remember, stem cells are for everyone!
Upon IVF completion 90% favor donation to ESCR
Category: General, Legislation, Religion, Cure Paralysis, Cure Paralysis Now — By: Faye on April 30, 2007
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In the discussions among politicians, scientists and some religions’ leaders, a key aspect is often overlooked: it’s a "patients helping patients" situation, and as long as the embryonic stem cell research takes place by informed consent of the donors, there is absolutely no reason to prohibit government funding of the research

"Among the couples who did not want to increase their family, 90% support the donation of embryos to stem cell research in a Catholic country, and, most importantly, almost no couple wants just to destroy the embryos," Menendez said.

Pablo Menendez is director of the Spanish Stem Cell Bank in Granada, Spain.

(Read on …)

Yearning for New Discoveries, Clinical Trials
Category: General, Parkinson's, Multiple Sclerosis, Spinal Cord Injury, Legislation, SCAN — By: Idelle Datlof on April 28, 2007

I find myself yearning to be writing about new scientific discoveries, planned human clinical trials, and general excitement and anticipation as to what secrets the paths of exploration are revealing. I am tired of politics, especially the brand practiced in Washington. I am watching the uneven progress in the states, anticipating endless legal challenges should funds be allocated, and getting a little impatient. Impatient, not for discoveries and cures, but impatient for the floodgates of funding to finally flow unrestricted. Next year it will be thirty years since I was first diagnosed with M.S. so I am entitled to be impatient.

(Read on …)

Open Letter to Governor Crist
Category: General, Spinal Cord Injury, Legislation, Cure Paralysis, Cure Paralysis Now — By: Faye on April 23, 2007

Dear Governor,

Please make a public declaration that you will veto any legislation such as HB 1065 which will place a ban on state funding of embryonic stem cell research. Even opponents acknowledge that embryonic stem cell research holds the most promise, that’s why they are constantly working to find ways to get adult stem cell to behave like embryonic stem cells.

But enough is enough. We don’t have time to fiddle around. Embryonic stem cell research has been held up at the federal level for 6 years now, and no suitable substitute has been developed that works as well as embryonic stem cells. Republicans in the state legislature ought to stop the symbolism at the expense of REAL Lives.

Geron will start it’s clinical trials with embryonic stem cells for the treatment of spinal cord injury later this year. Clearly actual treatments with embryonic stem cells are already in the works. As a soccer mom who’s son became paralyzed from a collision while playing soccer, I plead with you to keep the doors open to state funding for embryonic stem cell research so my son may walk again one day.

I trust that you will live up to your pre-election promise to support embryonic stem cell research in the state of Florida.

Thank you so much,

Faye

Counterfeit “HOPE” Act
Category: General, Legislation, Cure Paralysis, Cure Paralysis Now — By: Faye on April 20, 2007

What the anti embryonic stem cell research folks have been up to at the federal level with S 30 is frantically being copied at the state level in Florida down to the Orwellian naming: "Hope" Act.

These types of sneaky measures occur every time an embryonic stem cell research bill is introduced at the federal and/or state levels. Most recently It has happened in GA and Texas as well as Florida.

The Florida bills HB 1065 and SB 2496 are virtual clones of S30.

None of this deadly game playing is surprising given the fact that opponents of embryonic stem cell research are fighting a losing battle against 70% of Floridians who support embryonic stem cell research. As I’ve said before: STOP the symbolism at the Expense of REAL LIVES!!

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BACKSTAGE AT THE ANTI-RESEARCH ACADEMY AWARDS
Category: General, Legislation, Religion, StemCellBattles — By: Don Reed on April 16, 2007

Excitement is building—what an honor to be here, in support of the perpetual illness and injury philosophy—thanks to the efforts of those we honor tonight, cure has been put off for years to come.  

Not only are we protecting the sacred existence of microscopic dots in Petri dishes everywhere, but also the jobs of those who depend on chronic disease and disability. 

Think of it—do we want to put our hospitals and doctors out of work, or diminish the profits of our health care industry? Chronic injury is the very bedrock of—what’s that? Oh, sorry! We’re running late, let’s go inside, I’ll fill you in on the gossip as we go. 

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“Opportunity to vote to heal the sick”
Category: General, Cure Paralysis Now — By: Faye on April 15, 2007

Those were the words spoken by newly elected Senator Claire McCaskill, D-Mo. after the 63-34 vote in favor of S 5, opening up the door to federally funded embryonic stem cell research beyond the old, pre-2001 stem cell lines which are currently allowed to be used in NIH funded research.

S 5 will be voted on in the House soon, where it is expected to pass with a huge margin as well. About a month ago an earlier version (HR 3), had already passed by  253-174 . S 5 includes a provision for adult stem cell research as well as embryonic stem cell research, in order to broaden the bill’s appeal to additional lawmakers.

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Does Your Senator Think You’re a Moron?
Category: General, StemPAC, Legislation — By: Faye on April 10, 2007

More than 5 long years into President Bush’s short-sighted, cruel policy restricting stem cell research, America once again has the chance to reverse it — and strike a blow for hope.

The House of Representatives has already passed a bill to overturn President Bush’s restrictions. The Senate is expected to vote on this bill, Senate Bill 5, this week.

Write your Senators now, and tell them to support Senate Bill 5

Although stem cell research has bipartisan support, "pro-death" activists are working hard to torpedo this bill, and take hope away from millions of Americans. Some Senators have put up another bill, S 30, cynically called the "The Hope Offered through Principled, Ethically-Sound Stem Cell Research Act." The problem is — it actually imposes additional restrictions on stem cell research. In short, it’s a crock. But some senators apparently think their constituents are so stupid that they’ll fall for a warm fuzzy title. In short, they think you’re a moron.

Senate Bill 5 is the real deal. Senate Bill 5 is the stem cell bill supported by doctors, researchers, and patient advocates across the nation. Please write your Senators today. Tell them to support Senate Bill 5. And tell them — you are not a moron.

Stem Cell Folly - the Coleman-Isakson ‘No Hope for Patients’ Act
Category: General, Legislation, Contributors, GPI, Bernard Siegel — By: Faye on April 9, 2007

 

Contact: Bernard Siegel of Genetics Policy Institute, +1-305-801-4928, bernard@genpol.org

WASHINGTON, April 9 /PRNewswire-USNewswire/ — The following is a statement by Bernard Siegel, executive director of the Genetics Policy Institute: 

Senators Norm Coleman (news, bio, voting record) and Johnny Isakson (news, bio, voting record) of Georgia filed S.30, an alleged compromise stem cell research bill they have euphemistically titled the "Hope Offered through Principled and Ethical Stem Cell Research" Act or "Hope Act" for short. 

In reality, it offers scant hope to patients. Utilizing insidious language directly taken from the talking point playbook of the research foes, the bill would drive the National Institute of Health to push dubious research alternatives to embryonic stem cell research. 

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S 30, the No Hope for Patients Act
Category: General, Legislation, Religion, Cure Paralysis, Cure Paralysis Now — By: Faye on April 8, 2007

Deception, misinformation and delay is the name of the game for the anti-ESCR folks. They have introduced decoy bills galore in the 6 year history of our effort to overturn the Bush imposed restrictions on embryonic stem cell research. The newest bill, S 30, is one that is sponsored by both Isakson and Coleman.

To their credit both have admitted that the current Bush restrictions are extremely detrimental to the cutting edge science of embryonic stem cell research and that this science holds enormous promise. Each had already independently come up with a bill, but Isakson’s proposal was merged with the Coleman "HOPE" bill.

The deception starts with the naming of this bill. Using the term HOPE is literally offensive if it isn’t what the folks with incurable and deadly conditions actually consider "hope". (Read on …)

Couples Ask to Donate Embryos to Stem Cell Research
Category: General, Legislation, Religion, Cure Paralysis, Cure Paralysis Now — By: Faye on April 4, 2007

Donating embryos to IVF research or other infertile couples are options many infertility clinics have offered for years, but couples rarely choose either route. Instead, many have begun asking about donating to stem cell research.

It can cost couples $300 per quarter to keep their unused embryos frozen. If they no longer wish to pay the fee, and no other arrangement have been made, the embryos are simply discarded.

This means that if the IVF treatments were covered by state or federal health insurance plans,……… government already technically "funds" what the anti-ESCR folks like to call the "destruction of embryos".

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