We are a national patient advocacy organization that supports public funding of stem cell research. This research has the potential to remedy or cure Alzheimer's, juvenile diabetes, Parkinson's, MS, ALS, spinal cord injury, and many other illnesses and injuries.

SCAN is sponsored by the Genetic Policy Institute.

Many of our postings over the past year have been written by stem cell research advocate Don Reed. His blog is www.stemcellbattles.com.

We'd like to hear from you. Feel free to And remember, stem cells are for everyone!
hESCR Fight is NOT just against Fundy-Republicans.
Category: General, Legislation, Cure Paralysis, Cure Paralysis Now, state stem cell research — By: Faye on October 15, 2007
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Clearly something is seriously amiss in NJ.

An Oct 10th article in the Star-Ledger titled "N.J. acts on third stem cell research center" says this: 
 
"The three projects are being launched as voters prepare to consider a $450 million bond issue on Nov. 6 that would bankroll grants for research into stem cell-based medical treatments.
 
Embryonic stem cells, the building blocks of living things, are seen as a potential key to curing diseases like Alzheimers, Lou Gehrig’s disease and spinal cord injuries. But their use in research is opposed by critics who say it involves killing human embryos, and could lead to human cloning."
 
As an embryonic stem cell research supporter I have been extremely disappointed in NJ’s embryonic stem cell research efforts since their bold 2003 pro-ESCR announcement, and do not believe we’ll see much human embryonic stem cell research in NJ in the future either.
 
It’s pretty shocking to see NJ’s lack of interest in hESCR ( human embryonic stem cell research)! In fact it’s ironic to see the "anti-choicers" protest the ballot, when the pro-hESCR folks should be the ones to be outraged. Please see Senator Karcher’s letter to Governor Corzine attached below.

On Dkos you may also have seen my diary in June titled "Christopher Reeve Betrayed by NJ Governor".

 
Still hard to believe that even after the second round of stem cell funding in the BLUE state of NJ: 28 grants for ASCR ( adult and mouse-embryonic), and ONLY 5 grants for hESCR.
 
Unless the bond issue provides for substantial and dedicated hESCR funding it’s a sham. Voters beware!

A lesson for the hESCR community is that rather than work for the symbolism of making hESCR legal in all states, it may be more important to be vigilant in those states that already support hESCR but have not come through on their hESCR promise.

Let’s make sure we’re not just satisfied with "crumbs" as in "half a loaf is better than none", while the state of NJ falsely keeps hyping the extent of their hESCR funding.

September 20, 2007
 
Honorable Jon S. Corzine
Office of the Governor
P.O. Box 001
Trenton, N.J. 08625
 
 
Dear Governor Corzine:
 
As a firm supporter of stem cell research, I commend you for your efforts in bringing the state of New Jersey to the forefront of stem cell research.  I believe that it is imperative that the state of New Jersey funds the type of stem cell research that the federal government has chosen to ignore.    
 
I am writing to encourage you to explore the promotion of embryonic stem cell research.  If New Jersey wants to become a leader in stem cell research, it must also be a leader in promoting embryonic stem cell research.  It was my understanding that New Jersey would primarily be promoting embryonic stem cell research.  Yet, out of the seventeen award recipients of 2006, only two are truly focused on the promotion of embryonic stem cell research. 
 
I appreciate your consideration in this matter.  I would ask that you contact me at 732-462-8883 or at SenKarcher@njleg.org.
 
 
 
Sincerely,
 
 
Ellen Karcher
Senator, 12th Legislative District
STEM CELL WARRIORS, STEM CELL FRIENDS—PART ONE
Category: General, Spinal Cord Injury, Legislation, StemCellBattles — By: Don Reed on October 9, 2007

How pale are words, compared to the blazing reality of a maple leaf in Autumn — or a stem cell convention.

The Stem Cell Summit, October 2-3, was organized by Bernie Siegel’s Genetics Policy Institute, Steve Burrill’s Life Sciences Media Group, and, Harvard University, one of the greatest educational institutes in the world.

It was October 2, 2007. Hynes Convention Center, Boston Massachusetts . High ceilings, spacious auditoriums, light sources suspended high above, a soaring atmosphere.

It’s hard to pull highlights out of a meeting that was all highlights. But let’s try anyway.

Jammed—more than 600 high-impact executives, entrepreneurs, scientists, politicians, patients and activists—it occurred to me we really did not want an earthquake today, or we could have lost a huge cross-section of the stem cell research leadership of the nation.

(Read on …)

Preaching to the Choir
Category: General, Legislation, Cure Paralysis, Cure Paralysis Now — By: Faye on September 24, 2007

Funny how a lot of stem cell advocacy is simply preaching to the choir, with a few exeptions like Michael J Fox, who takes his message directly to the people through well-placed commercials:

http://www.youtube.com/watch?v=o8lsjfjgAA8

I have high hopes for a new advocacy organization created by Michael J Fox called: Cures and Hope USA

Cures and Hope USA is a non-partisan, pro-stem cell educational and political advocacy organization dedicated to building nationwide support for stem cell research, including embryonic stem cell research (ESC). Cures and Hope USA’s focus will be to educate the electorate on all forms of stem cell research so that voters will make informed decisions when they enter the voting booth in 2008.

There are other ways non-partisan advocacy organizations can have an impact outside the realm of  "preaching to the choir", and that is to monitor and and hold accountable state stem cell programs as to their effectiveness in funding the type of stem cell research that the federal government has chosen to ignore.

In the absence of advocacy organizations’ strong response against states that use the positive ESCR propaganda to primarily funnel monies into adult stem cell research, it is heartening to see a prominent state Senator taking up the "diversion" issue where ESCR advocacy organizations failed:

September 20, 2007

 

Honorable Jon S. Corzine

Office of the Governor

P.O. Box 001

Trenton, N. J. 08625

 

Dear Governor Corzine:

 

As a firm supporter of stem cell research, I commend you for your efforts in bringing the state of New Jersey to the forefront of stem cell research.  I believe that it is imperative that the state of New Jersey funds the type of stem cell research that the federal government has chosen to ignore.    

 

I am writing to encourage you to explore the promotion of embryonic stem cell research.  If New Jersey wants to become a leader in stem cell research, it must also be a leader in promoting embryonic stem cell research.  It was my understanding that New Jersey would primarily be promoting embryonic stem cell research.  Yet, out of the seventeen award recipients of 2006, only two are truly focused on the promotion of embryonic stem cell research. 

 

I appreciate your consideration in this matter.  I would ask that you contact me at 732-462-8883 or at SenKarcher@njleg.org.

 

 

 

Sincerely,

 

 

Ellen Karcher

Senator, 12th Legislative District

 

PS 1 A big "thank you" goes out to Bob Katz, for forwarding a copy of this letter to stemblog.

 

PS 2 Let’s join Ellen Karcher in questioning Governor Corzine directly about how ESCR is quite neglected in NJ, contrary to the big hoopla that corzine and others are making over getting ESCR going in NJ.

 

For starters let’s send Senator Karcher a big THANK YOU note for standing up for the patient families who are desperately waiting to see ESCR proceed in the context of the various state programs.

 

Clinical Trials for ESCR Treatments Starting in 2008
Category: General, Spinal Cord Injury, Legislation, Cure Paralysis, Cure Paralysis Now — By: Faye on September 10, 2007

One of the favorite arguments used "against" federal funding for ESCR is that "ESCR hasn’t led to a single cure yet". The catch 22 is that lack of research funds inevitably leads to lack of progress.

But luckily those who make their false claim are grossly wrong, as I know of at least three treatments that will be going to clinical trials in 2008. Two are for spinal cord injury and one is to treat blindness.

Ironically the first treatment uses cells from the 8 week stage of development that were obtained from elective abortion, but which are actually eligible for federal funding:

(Read on …)

The Stem Cell Summit in Boston, Oct 2-3, 2007
Category: General, Spinal Cord Injury, Legislation, Cure Paralysis, Cancer, Cure Paralysis Now — By: Faye on September 4, 2007

With a new President on the horizon, things are definitely looking up in the cutting-edge science arena. We will most certainly be able to accelerate the innovative discoveries needed to cure devastating medical conditions.

Those of us who are dealing with debilitating and deadly disorders in our families, will be pleased to find out about the latest advances that have already been made in hESCR and other stem cell research.

I urge you to check out this exciting line-up of leading stem cell researchers, and meet policy experts and family advocates at The Stem Cell Summit in Boston, Oct 2-3, 2007. Partial roster of speakers:

Edward J. Benz, Jr., MD
CEO, Dana Farber Cancer Institute

Kenneth R. Chien, PhD
Director, MGH Cardiovascular Research Center

George Q. Daley, MD, PhD
Principal Faculty, Harvard Stem Cell Institute
Assistant Director, Stem Cell Research Program, Children’s Hospital Boston
President-elect, International Society for Stem Cell Research
(Read on …)

Who Do They Think They Are?
Category: General, Diabetes, Legislation, Cancer — By: edsbrooklyn on August 16, 2007

Last evening I went to a memorial service for a friend — a 44 year old woman with a loving husband and two small children, one of whom has type 1 diabetes.  She died of a brain tumor just three months after diagnosis.

As I do every few weeks, yesterday morning I went with my son to his appointment at a children’s cancer and hematology clinic, where we spent the day hanging out with kids with cancer, leukemia, sickle cell and other diseases, and their families.

Another young friend died of pancreatic cancer on May 24, leaving his wonderful wife and their lovely 12 year old daughter behind.

Carnacki did a wonderful but terrifying Cancer Roll Call diary back on March 28 and we learned that virtually everyone at Daily Kos has been touched by cancer personally, often intimately.

Can you guess where I’m going with this?

(Read on …)

Comment on CIRM Funding vs NJ Stem Cell Funding

Jeff Eisen commented on the CIRM funding in the comment section of the previous blog entry. He said:

According to the CIRM in California, the breakdown of grants to date is as follows:

1. $37.5 million for training, supporting 169 pre- and post-doctoral fellows at 16 different institutions.
2. $50 million for facilities; research labs shared by 17 institutions
3. $46 million for 76 different “Seed Grants”
4. $76.6 million for “Comprehensive Grants”; 4-year studies, 29 different investigators

(Read on …)

Does it matter whether NJ money goes to ESCR or ASCR?
Category: General, Legislation, Cure Paralysis, Cure Paralysis Now, state stem cell research — By: Faye on July 27, 2007

 

Why were we even fighting for ESCR ALL these years when we let states like NJ get away with jilting ESCR in favor of ASCR ( this includes bonemarrow stem cells, umbilical cord blood stem cells and placental stem cells)?
 
How can the ESCR community deceive ESCR supporters by not making the distinction and doing exactly what ESCR opponents have done over the years.
 
ESCR opponents have for a long time hidden behind the generic phrase "I support stem cell research", leaving it unknown to the general public ( even reporters) if that even includes any ESCR.
 
Well hESCR was jilted in NJ.
 
While the governor ( Corzine) waved the hugely popular pro-ESCR flag, he and his ilk schemed to make NJ the adult stem cell research hub of America. And you are helping them propagate their pro-ESCR lies to the public.

How can we collectively, shamefully go along with the NJ deception of ESCR supporters?

(Read on …)

In Remembrance of Debbie Kelsoe
Category: General, Spinal Cord Injury, Legislation, Cure Paralysis, Cure Paralysis Now — By: Faye on July 20, 2007

Sadly Debbie Kelsoe who was spinal cord injured on Oct 18th, 2000, in a car accident, passed away from an aneurism earlier this month.

Besides Christopher Reeve and my son Jason who also became paralyzed in Jan, 1997, no one has inspired me more than Debbie. Debbie was an ardent stem cell research activist and also authored a book to increase awareness of the horrors of living with a spinal cord injury. The dire need for embryonic stem cell research and the cruelty of any further delays are apparent from seeing what has happened to Debbie. Please check out her book The Silent Minority No More.

Debbie also was one of a group of six, who co-founded Cure Paralysis Now

 Her spirit will live on in all the people she touched.

Some people’s lives can truly make a difference. However long or short their lives on earth, they give the gifts of kindness and of caring. They sow the seeds of friendship and awareness. Some people’s lives are beautiful examples of putting others first and when they’re gone, the lives of those they touched are so much richer, and the love they shared lives on and on.

Luv Ya, Deb. I will so miss you.

After Bush’s Veto, State hESCR Programs Most Important
Category: General, Legislation, SCAN, GPI, Cure Paralysis, Cure Paralysis Now — By: Faye on July 16, 2007

The clock will eventually run out on Bush’s opposition to federally funded hESCR.

One would think it’s time for the hESCR movement to regroup and focus on advancing hESCR funding where it counts most now: the states.

Pardon me for being kind of skeptical, but I hope the hESCR movement intent is not to whitewash the obvious "NJ as the ASCR hub of America" issue with the cop out: "well, there weren’t many good ESCR applications"
 
That would beg the question then: "Why even start an ESCR program in New Jersey, if there isn’t already a strong enough interest among the scientific community of NJ?"
 
The "a priori" intent of some of the people working on the ESCR legislation in NJ may have been to make NJ the adult stem cell research hub that it has now become.

(Read on …)

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